"She will either be stillborn, you'll miscarry or she will suffocate in your arms after she is born," Jaime says she was told.Jaime and Dan were faced with a choice -- end the pregnancy now or wait for nature to take its course? Yet, as the doctors were explaining that there was a 0% chance of survival, Jaime could feel her baby girl kicking inside of her all the while. [rsnippet id="3"] The shock of the devastating news left the couple in no condition to make any decisions that day. They went home to process all of the information that had been discussed, where Jaime collapsed in a wave of emotion.
"We got home and we just lost it," Jaime says. "I remember sitting on the floor sobbing and Dan comes over and puts his arm around me … So in my mind I’m starting to feel like, 'They tell us with 100 percent certainty she will not live. Yet she’s alive right now.' How do you square that in your mind? You don't. You totally lose it."The couple sought opinions from more doctors, only to receive the same grim prognosis. So, Jaime and Dan decided to step out on faith, deciding they weren't going to give up on their baby. . . or God. Instead, they chose to pray earnestly for a miracle.
"I thought, 'I know the doctors are wrong but she's not going to believe me. I have to find someone to get an introduction to me,' " Rob recalled.His son's life had been saved by amnio infusions of saline into his wife's uterus. The kidneys are responsible for producing the amniotic fluid needed for overall development of the fetus, especially the lungs. Because little Abigail had no kidneys, the rest of her body was not developing. But because of the experience with his son, Rob knew the saline injections were capable of providing the fluid that was missing. Rob didn't give up until he was able to pass the information along to Jaime. He put her in touch with the doctor that had helped him -- Dr. Jessica Bienstock, a perinatologist at Johns Hopkins Hospital in Baltimore. Despite the success with Rob's son, Dr. Bienstock was very skeptical that the saline injections would do any good. That's because the ultrasound revealed that little Abigail already had significant deformities as a result of having no kidneys -- her head was misshapen, her feet looked clubbed and her chest looked small. But Jaime and Dan remained faithful.
"The difference between 0 percent hope and .00001 percent hope is enormous," says Dan.
"We kept putting fluid in and her chest circumference grew," Dr. Bienstock says. "We saw Abigail practicing breathing inside."So, they kept going. There was no way to track lung development, so Jaime and Dan just continued to put their trust in the Lord and pray for a miracle. RELATED: God sends a miracle just as these parents are kissing their baby girl goodbye The true test came with contractions hit Jaime while she was on the House floor, sending her into pre-term labor at 28-weeks. Little Abigail was born on July 15, 2013, weighing only 2 pounds, 12 ounces.
"That's our miracle," Jaime thought when she heard that sweet cry.With her lungs so well developed, doctors then turned their attention to the next hurdle -- her lack of kidney function. She had surgery the following day and immediately began dialysis treatments. The results were an active and stable baby breathing on her own. Abigail was the first baby with Potter syndrome ever known to have survived!
"I wanted to do everything I could to make her life better," Dan said.
"I just stopped and looked at her and said, 'Oh my goodness. She wasn't even supposed to be here …and now she's got this amazing whole life in front of her.' We're incredibly blessed and it's worth it," Jaime said.[rsnippet id="2"] The transplant was a success, which meant the end of Abigail's dialysis. And today, she's a happy, healthy toddler.
"The LORD your God is in your midst, a mighty one who will save; He will rejoice over you with gladness; He will quiet you by His love; He will exult over you with loud singing." Zephaniah 3:17